Site participants, as you know, we have launched this new site due to the closure of the hosting platform of the current CLL Forum site. We have incurred some costs, and want to open up the opportunity for new site participants to donate money to the upkeep of the new site. Here are the costs that we have incurred to date, so that we can provide transparency:
Hosting at new site (for three years): $271 - this is at an introductory rate, and is expected to more than double after the first three years.
PayPal Transaction fees: Varies
If you would like to donate, please use the PayPal Donate button at the bottom of this page. If you would prefer to mail in a check, please send a private message to either drmoss_ca or JCreager.
Thanks
Jennifer and Chris
Fundraising for new site
- JCreager
- Site Admin
- Posts: 154
- Joined: Sun Nov 27, 2022 9:09 pm
- I am a: Patient
- CLL Status: In Treatment
- Cancerversary: 15 Sep 2015
- Location: San Diego
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- Posts: 80
- Joined: Tue Dec 13, 2022 6:50 pm
- I am a: Patient
- CLL Status: Falling Out of Remission
- Cancerversary: 20 Sep 2014
- Location: Oregon
Re: Fundraising for new site
Did it Jen. Hope others join in too. Thank you to you and Chris for all this work!
Happy New Year!
Happy New Year!
- JCreager
- Site Admin
- Posts: 154
- Joined: Sun Nov 27, 2022 9:09 pm
- I am a: Patient
- CLL Status: In Treatment
- Cancerversary: 15 Sep 2015
- Location: San Diego
Re: Fundraising for new site
Thanks so much!
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- Posts: 115
- Joined: Mon Dec 12, 2022 3:07 am
- I am a: Patient
- CLL Status: In Remission
- Cancerversary: 10 Sep 2016
- Location: Live in motorhome. In Oregon, headed south for winter.
- Contact:
Re: Fundraising for new site
Done! One problem, I think, is that the Donate icon is a bit hard to find.
Unmutated, with no deletions.
Finished treatment w/ Gazyva & Ventoclax in Jan 2020.
Currently in remission
Finished treatment w/ Gazyva & Ventoclax in Jan 2020.
Currently in remission
- JCreager
- Site Admin
- Posts: 154
- Joined: Sun Nov 27, 2022 9:09 pm
- I am a: Patient
- CLL Status: In Treatment
- Cancerversary: 15 Sep 2015
- Location: San Diego
Re: Fundraising for new site
Thank you! And thanks for the feedback, I'll play with the HTML a little more.
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- Posts: 21
- Joined: Fri Jan 06, 2023 4:52 pm
- I am a: Patient
- CLL Status: In Treatment
- Cancerversary: 29 May 2015
Re: Fundraising for new site
Well this explains why I had so much trouble finding site and logging in. I registered with new username and email and will definitely donate.
I was part of the BR treatment group back in 2015-2016. After 7 years without treatment, it is time for treatment. Looking at Acalabrutinib, Venetoclax and Obinituzimab, and a clinical trial.
I was part of the BR treatment group back in 2015-2016. After 7 years without treatment, it is time for treatment. Looking at Acalabrutinib, Venetoclax and Obinituzimab, and a clinical trial.
Diagnosed with CLL/SLL 5/29/15.
Unmutated, del 13 and 11q
6 rounds BR treatment 7/15-11/15.
Started treatment with Acalabrutinib 2/9/23.
Unmutated, del 13 and 11q
6 rounds BR treatment 7/15-11/15.
Started treatment with Acalabrutinib 2/9/23.
- JCreager
- Site Admin
- Posts: 154
- Joined: Sun Nov 27, 2022 9:09 pm
- I am a: Patient
- CLL Status: In Treatment
- Cancerversary: 15 Sep 2015
- Location: San Diego
Re: Fundraising for new site
Hi Ken, BR buddy! Welcome to the new forum! Good news is that there are lots of great treatments available, I should know, as I have had them all Good luck and definitely message me with any questions you might have.
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- Posts: 28
- Joined: Wed Dec 07, 2022 12:50 am
- I am a: Patient
- CLL Status: In Remission
- Cancerversary: 08 Aug 2007
- Location: california and hawaii
Re: Fundraising for new site
Just donated as well. I'm thrilled to see this site up and running and, browsing through those registered, so happy to see old CLL friends. Many thanks to Chris and Jenn for all their work setting this up. Me ke aloha Lynn Samuels
13q- unmutated. Monosomy 7. In remission.
2017-2021: mono Venetoclax / 2015: 4 months Obinutuzumab / 2012-2013: NIH trial Ibrutinib.
Left trial dx with NSCLC. NIH surgeries 2012-1014 / 2015: SBRT for two small lung tumors
2017-2021: mono Venetoclax / 2015: 4 months Obinutuzumab / 2012-2013: NIH trial Ibrutinib.
Left trial dx with NSCLC. NIH surgeries 2012-1014 / 2015: SBRT for two small lung tumors
- drmoss_ca
- Site Admin
- Posts: 347
- Joined: Wed Nov 16, 2022 10:03 pm
- I am a: Patient
- CLL Status: Post Transplant
- Cancerversary: 30 Jul 2014
- Location: Nova Scotia
Re: Fundraising for new site
Thank you, Lynn!
C.
C.
Diagnosed July 2014.
FCR x6 Oct 14 - Mar 15.
Relapse 2019, with new 17p13 deletion.
Started ibrutinib Dec 2019.
Transplant February 17th 2021.
FCR x6 Oct 14 - Mar 15.
Relapse 2019, with new 17p13 deletion.
Started ibrutinib Dec 2019.
Transplant February 17th 2021.